NeuroHope is a 501(c)3 non-profit that provides long-term physical rehabilitation and wellness following neurologic injury. TIN: 46-1842276
Your contribution keeps our extended care services strong. Thank You!
© Copyright NeuroHope 2024
NeuroHope Founder and Executive Director, Chris Leeuw, will be the Moderator at the Rehab Week 2017 panel discussion, “V.I.T. – Not Only For V.I.P.: How to Make Very Intensive Therapy Effective and Affordable” July 20th in London.
Rehab Week is a series of conferences presented by the International Industry Society in Advanced Rehabilitation Technology (IISART). The event brings together healthcare leaders, researchers, and manufacturers from around the world to discuss the latest advances in the industry, and to connect the engineers that design rehabilitative products with the clinicians that use them with their patients.
The panel discussion on July 20 will focus on the importance of making state-of-the-art interventions affordable and accessible to the patients that need them. Panelists will include: Dr. Volker Homberg, Secretary General of the World Federation of Neurorehabilitation, Dr. Dale Hull, Founder and Executive Director of Neuroworx, Dr. Gery Columbo, CEO of Hocoma, and Dr. Marta Imamura, Medical Officer at the World Health Organization.
View the promo video for the panel discussion below, and learn more about Rehab Week by clicking here.
Video Transcript:
“There is a new paradigm of neurologic recovery that is taking place. Technology, state-of-the-art interventions, and new rehabilitative tools and devices are being researched and incorporated more and more into the recovery process. It is a “cog” in the wheel of a comprehensive program that emphasizes high intensity, repetition, and continued access, so patients can be put in a position to maximize recovery and improve their quality of life.
There is a problem with the traditional healthcare model that centers around reimbursement instead of patient access. Healthcare costs are rising and insurance caps for rehabilitative therapy are becoming more restrictive. We are at a time where discoveries are being made and innovations are becoming available, but in most places, long term access to these resources are more limited than ever.
So, how do we fix it?
This is the conversation we will be having at Rehab Week in London. The Thursday panel will bring together healthcare leaders from leading hospitals, specialized rehabilitation clinics, the World Health Organization, and manufacturers of some of the most innovative technologies available.
I’m excited to lead the discussion because I’ve lived it. I have battled back from my own spinal cord injury and been through the recovery process as a patient, and now, as a provider.”
The NeuroRecovery Network (NRN) held its annual summit at Frazier Rehabilitation Institute in Louisville, Kentucky last week. NeuroHope is laying the groundwork to join the network later this year, and our staff was invited to attend and learn about the innovative therapy interventions that are being researched and implemented at NRN sites across the country and overseas.
The NRN is a collaboration of clinical sites tied to rehabilitation hospitals (Craig Hospital, Frazier Rehab Institute, Kessler Institute for Rehabilitation, Magee Rehabilitation Hospital, Ohio State University Medical Center) and independent sites aimed to continue aggressive therapy and wellness for patients after they leave the hospital system (Next Step, Courage Kenny, Journey Forward, NeuroKinex).
The inspiration to begin this unique network of sites began through the work of Dr. Susan Harkema and Dr. Andrea Behrman, whose research led to a better understanding of neuroplasticity, which is the ability of nerve cells in the central nervous system to develop new connections and learn new functions. Their work provided new evidence about the role the spinal cord plays in stepping, standing, and interpreting sensory information to re-learn tasks.
The Christopher and Dana Reeve Foundation (CDRF) helped fund the original research, and in the years since, the Foundation has been devoted to translating results to the clinic to help patients recovering from and living with spinal cord injury.
The NRN revolves around providing Activity-based therapy, a specific technique that activates the nervous system below the injury level and focuses on strengthening muscle weakness and neurologic recovery. In addition to specific manual techniques, a principle Activity-based intervention is Locomotor Training. Locomotor Training allows injured individuals to repetitively practice standing and stepping using body weight support. In a therapy session, the participant is suspended in a harness over a treadmill at a high speed while specially trained therapists move the legs and ankles using specific sensory cues to simulate walking. As the person gains function, improvements in sitting, standing, core strength, circulation, and bone-density may occur.
Dr. Harkema is also a pioneer in implementing epidural stimulation in her work, which made global headlines in 2011 and 2014 for restoring movement in four spinal cord injured individuals. Since then, the NRN has incorporated new methods of NeuroMuscular Electrical Stimulation (NMES) at their sites to target upper extremity function, increase movement, and improve neuroplasticity. NMES uses parameters beyond typical electrical stimulation to excite the central nervous system and activate weakened muscles.
Drs. Harkema and Behrman delivered lectures at this year’s summit and worked with NRN staff members from sites around the country as they practiced evaluation and activity-based therapy techniques.
We were honored to be invited to the summit and learn from some of the best minds in the world of neuroscience. NeuroHope will soon be one of just 13 sites in the world where these innovative techniques are available.
Learn more about the NRN below:
From 64 charities to the FINAL FOUR, and we are still standing! When this “competition” began last month, we thought it was a long shot to get this far. WHY UNDERESTIMATE OUR SUPPORTERS?
You guys are awesome. We have raised $30,000 so far and are just one week away from a potential $10,000 champion bonus!
A veteran of the Pike Township Fire Department and the War in Afghanistan, in June of 2015, John Piper suffered a life changing spinal cord injury in a motorcycle crash. His journey from the ICU to inpatient and outpatient rehab, to extended rehab at Frazier Rehabilitation Institute and NeuroHope is an inspiring one.
Recovering from neurologic injury is a physical, mental, and emotional battle. The determination John shows each day is moving.
THIS is what it’s all about everyone!
Goodman Campbell Brain and Spine, one of the largest and most trusted neurosurgery practices in the country, has teamed with NeuroHope in the 2017 Brackets For Good fundraising tournament!
Their endorsement of our mission is especially important to me personally. Their practice has treated thousands of patients at 16 locations across Indiana, and each has placed total trust in Goodman Campbell’s standard of care during the most frightening time in their life. One of those patients was me.
At 9:00 PM on Sunday, August 8th 2010, I was laying in an ICU paralyzed from the neck down.
Hours earlier, a man inadvertently landed on my head as we jumped into a river near Edinburgh, Indiana. Four vertebrae in my neck were fractured and my spinal cord was crushed. I never lost consciousness. I never even felt a twinge of pain. I was clear-headed as my body was dragged to the beach, and completely lucid during the wait for paramedics and for the helicopter flight to downtown Indianapolis. I remember being wheeled through the hospital and into my MRI scan as if it happened yesterday.
When the whirlwind of the first few hours was over, I found myself staring at the ceiling tiles of Methodist Hospital trying process what had happened. I knew nothing about spinal cord injury and I had no way to comprehend the lengthy rehabilitation process that was in front of me. At the time, I only wanted to know what was supposed to happen next.
Dr. Saad Khairi, a top neurosurgeon at Goodman Campbell, dropped what he was doing that night and rushed to Methodist Hospital when he received the call. My mother was in the ICU with me when he walked through the door. He told us that my neck had to be stabilized and that my C2 through C6 vertebrae had to be fused immediately. Receiving news like that is a lot to handle.
How long until I go under? Do I ask for a second opinion? Am I even at the right hospital? Who is this surgeon that will have my life in his hands?
In a matter of minutes we were on the phone asking three separate people in the healthcare world for advice. Each said the same thing. We were in the right place and Dr. Khairi was the surgeon to have. Within an hour the fusion was underway.
The next several days were the most challenging – physically and mentally – of my life. Immediately after surgery, I needed a ventilator to breath. My lungs were filled with secretions and I had to learn how to breathe again before I could even think about the rest of my paralyzed body. As the days passed, I began to experience what life as a quadriplegic would entail. Therapists ranged my limbs, nurses re-positioned my body every two hours, and a team of people attended to everything I needed from feeding, to shaving, to bathing. As reality set in, I needed to know every detail about my injury, and my chance of recovery.
I flagged down Dr. Khairi whenever I could, and he stood at my side to answer every question I had. He empathized with me and I could tell he wanted to educate me on my injury. Two days after surgery, I could flex a single muscle in my thigh and I had spotty sensation in my extremities. Dr. Khairi said that meant signals from my brain were making their way (in some capacity) down my injured spinal cord. It was my first lesson in neurorecovery, and my first glimmer of hope.
A week later he came to my bed as I was being discharged to the rehabilitation hospital. Once again, I wanted to know what to expect. Every spinal cord injured individual asks the same question when they are hurt: “Will I walk again?” In the immediate aftermath of the injury, we’re naive to the complexities of the injury and the magnitude of the struggle ahead. We don’t understand normalized blood pressure, a neurogenic bladder, or muscle spasticity. Our minds jump right to the big picture – walking.
Dr. Khairi calmly said that he couldn’t give me an answer. My injury was severe and the odds were against it, but he told me, “Kick your tail in rehab, and we’ll see where you are in a year”.
It was the most exhausting year of my life. I spent two months at a rehab hospital, four months at a nursing home, and six more months at an outpatient clinic across the country. Finally, in August of 2011, I wheeled into Goodman Campbell for a one-year check-up. With my wheelchair parked in the lobby, I rose to my feet and walked into Dr. Khairi’s office to let him know I took his advice.
“Every once in awhile, I have a rock-star patient that blows the doors off the statistics,” he said.
The appointment didn’t need to be long. It was a check-up to make sure that my spinal fusion had healed properly. But, I had learned a lot about spinal cord injury and the recovery process, and I had a laundry list of new questions to ask. Once again, he took the time to answer every one. He pulled out a tablet and showed me detailed images of the fusion, and even took the time to dig up my original MRI and X-ray from the day of the accident.
In 2011, my rehab was far from over. I continued aggressive therapy for another year. Even today, my daily routine revolves around combating my disability. But, Dr. Khairi and Goodman Campbell played an integral role in my recovery and my early education after a life-altering event. They supported me, and I’m honored that they support the “rock-star” patients at NeuroHope as well.
The physical therapy team at NeuroHope has been named “Top Honoree” for Community Achievement at the 2017 Health Care Heroes Awards!
The annual event, presented by the Indianapolis Business Journal, took place during an elegant breakfast at the Conrad Hilton to recognize doctors, hospitals, community programs, and volunteers who are devoted to bettering health care in Indiana. NeuroHope was humbled to be among the nominees, and honored to take home the top prize in Community Achievement.
Read the article in the Indianapolis Business Journal here!
Director of Therapy Nora Foster accepted the award, flanked at the podium by her amazing team of Sara Sale and Donna Peterson. These ladies are the heart and sole of NeuroHope. Two years ago, they took a leap of faith to join me in a daunting task. As highly trained therapists in neurologic injury, they recognized a void in care in the healthcare landscape, and from a purely altruistic motive, decided to help address it. Their effort has led to the creation of a clinic where injured individuals can continue affordable physical therapy and wellness programs to maximize their recovery process and improve long-term quality of life.
Every clinic revolves around the standard of care it provides its patients. That standard begins and ends with the knowledge, skill, and compassion its clinicians provide. There is no team of therapists I would rather have leading NeuroHope than Nora, Donna and Sara. I witness their work every day, and I’ve experienced it first hand. For me, it’s personal.
Donna and Sara were two of the first therapists that worked with me following my spinal cord injury 7 years ago. Paralyzed from the neck down, I was admitted to the Rehabilitation Hospital of Indiana two weeks after my injury to begin the grueling recovery process. Donna was assigned to my case. I knew nothing about spinal cord injury. I knew nothing about the complications my body was experiencing, and I was completely in the dark about my chances for recovery. I was a floating head on a pillow with no concept of the journey that lay ahead.
Inpatient therapists are tasked with a difficult role. Doctors slam their patients with a whirlwind of information and a glimpse of their diagnosis, but therapists are on the front lines to pick up the pieces. They are the first clinicians to spend extensive time and offer hope to injured individuals. Their job is to implement a physical recovery plan, but they unwittingly become counselors, teachers, and mentors as well.
Donna was with me every day for the first eight weeks of the most trying period of my life. Sara participated in a few of my early sessions as well. At a time when therapy was spent ranging my limbs, and contracting a single muscle was a major victory, they pushed me, educated me, and took the time to answer every question I had about my injury. Most importantly, they cared deeply about my progress. They were on the journey with me. Seven years later we are on a remarkable journey again.
Nora gives the same devotion to each and every one of her patients. It is a pleasure to watch her work, and an honor to have her leading the services at NeuroHope. When I met her three years ago, NeuroHope was only an idea. The vision was planted in my head, but without the right clinician, the roots of NeuroHope would never take hold. I needed a therapist skilled and passionate about neurologic recovery, with the “fire-in-the-belly” to help will NeuroHope into existence. I’m honored to have found her.
I can not imagine three individuals more deserving of their “Hero” recognition. Not just for their role in creating NeuroHope, but for the lives they have touched throughout their entire careers.
NeuroHope has been selected to participate in the 2017 Brackets For Good fundraising tournament!
This is the only “sport” for nonprofits and anyone can join our team to help us win a $10,000 grand prize! Modeled after the March Madness NCAA basketball tournament, 64 charities compete in weekly head-to-head fundraising match-ups. The winners advance all the way to the championship.
It starts Friday, February 24th!
Check out Chris at the Indianapolis bracket release pep rally, and learn about the tournament:
Each round lasts one week. Once the tournament begins anyone can follow the real-time scoreboard, view the bracket, and donate online through the link below. You can also donate easily by TEXTING “NeuroHope” to 27722.
So, stay tuned throughout the tournament! Follow our updates on Facebook and Twitter, and share them all so we can spread the word!
The physical therapy team at NeuroHope has been selected as one of three nominees in “Community Achievement” for the Indianapolis Business Journal’s 2017 Health Care Heroes Award!
NeuroHope was created three years ago because of a simple realization: Many patients recovering from neurologic injury are discharged from rehabilitation too soon with no place to continue their recovery. Insurance caps therapy coverage after only a few months and traditional healthcare clinics are unable to continue treatment at an affordable out-of-pocket rate.
NeuroHope’s Director of Therapy, Nora Foster (DPT), and her team of Donna Peterson (PTA) and Sara Sale (DPT) have embarked on a path to fill this void in care. From a purely altruistic motive, and with no experience in healthcare administration, they became devoted to creating a clinic that operates beyond traditional, insurance-based services.
NeuroHope integrates insurance visits with extremely discounted private-pay rates in order to provide patients with long-term care. This involves combining aggressive therapy with wellness goals to maximize recovery and improve quality of life.
In two short years, NeuroHope’s vision has proven successful. The team has created a non-profit outpatient healthcare clinic from scratch, become credentialed with Medicare/Medicaid and commercial insurance, and works with the Krannert School of Physical Therapy at the University of Indianapolis to provide students with Internship and volunteer opportunities. NeuroHope’s patient-centric model was also the catalyst behind a 2015 change in Indiana law to help fund long-term rehabilitation programs.
Most importantly, Nora and her team have helped 36 patients, ranging from spinal cord injury, brain injury, stroke, multiple sclerosis, and cerebral palsy on along their road to recovery.
This recognition is well-deserved for Nora, Sara, and Donna. Not only for the work they have done to launch NeuroHope, but for the devotion they have shown to all of their patients over the their entire careers.
The 2017 Health Care Heroes Awards will be presented at a special IBJ breakfast at the Hilton Conrad on Friday, March 3rd.
Click here for more information.
The staff, volunteers, patients, and families of NeuroHope would like to wish YOU a Happy Holiday season, and a prosperous 2017!! We are rapidly approaching our two-year anniversary, and have our supporters to thank for their interest in making the NeuroHope vision of providing affordable, extended care for individuals living with paralysis a reality.
2016 proved to be an exciting year of growth. Over the last 12 months, NeuroHope has become a credentialed outpatient clinic with Medicare/Medicaid and private insurance, moved to a larger space in Fountain Square (through the generosity of the UIndy Krannert School of Physical Therapy), and increased our operating hours to serve more people on our waitlist.
I reached out to NeuroHope in August attempting to find my Mom a better chance for recovery at a private pay rate that could be afforded.
What I have discovered is that the therapists at NeuroHope bridge the gap for patients like my Mom who are making great progress but insurance no longer will cover therapy. From the first evaluation with Nora, my Mom said her goal was to walk by Christmas. Nora was so compassionate, and the empathy that she showed both my Mom and Dad during those first sessions in physical therapy was so greatly appreciated. The team of therapists, Nora, Sara, Donna, and Wendy have provided my Mom which such excellent specialized care.
On October 31st Donna brought the rolling walker out and said “let’s try the walker”. I was so happy I was there that day to witness my Mom walking for the first time with a rolling walker. It meant the world to my family to see my Mom taking those first steps towards her goal.
I can’t even put in to words what the NeuroHope therapists have meant to my Mom and family. They have given my Mom a chance for a better recovery and hope for a better quality of life. I feel the therapists at NeuroHope do what they do because they truly care about the lives of their patients. I would like to thank the therapists at NeuroHope for their knowledge, compassion, and desire to help those who have had serious neurological injuries reach their goals!”
True to her promise to “walk by Christmas”, JoAnn returned to her Doctor’s office last week to a ROUND OF APPLAUSE!! It has been a joy to watch JoAnn’s progress, and we are honored to be a part of her journey!
NeuroHope is a 501(c)3 non-profit that provides long-term physical rehabilitation and wellness following neurologic injury. TIN: 46-1842276
Your contribution keeps our extended care services strong. Thank You!
© Copyright NeuroHope 2024